Navigating healthcare can feel overwhelming, especially when communication barriers or sensory challenges come into play. Advocating for yourself ensures you receive the care you need in a way that respects your needs and preferences. Here’s how to take control of your healthcare journey.
1. Prepare Before Appointments
Going into an appointment with a clear plan can reduce stress. Write down your symptoms, questions, and any concerns in advance. If certain sensory experiences—like bright lights or long wait times—are difficult, call ahead and ask if accommodations can be made.
2. Bring a Support Person
Having a trusted friend, family member, or advocate with you can help communicate and provide emotional support. They can take notes, ask follow-up questions, and address your concerns.
3. Communicate Your Needs Clearly
If verbal communication is challenging, consider using written notes, apps, or visual aids. Let the healthcare provider know how you prefer to communicate. It’s okay to ask them to slow down, rephrase information, or give you extra processing time.
4. Know Your Rights
You have the right to be heard, accommodated, and respected. If a provider dismisses your concerns, seek a second opinion. You deserve care that prioritizes your well-being.
5. Follow Up and Keep Records
Keep copies of medical reports, prescriptions, and appointment summaries. This helps track progress and ensures continuity of care. Don't hesitate to follow up if something feels off after a visit.
Your Health, Your Voice
Advocating for yourself takes practice, but your needs matter. By preparing, communicating, and standing firm, you can create a healthcare experience that works for you.
For more information, download the One Autism Health app for FREE.
